ALS Research – Guidelines and Procedures


Who May Apply

Organizations that are exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code, contributions to which are deductible under Section170 of the Internal Revenue Code. The organization should qualify as a public charity under Section 509(a)(1) or (a)(2) of the Internal Revenue Code.  The Foundation only accepts one application per institution for each funding cycle.

Funding Areas of Interest

The Foundation is interested in supporting research that is aimed at discovering the causes of and finding a cure for ALS.

What We Fund

The Foundation funds research that is innovative and aggressive. We encourage partnerships and collaborative efforts in proposing initiatives to fill gaps not currently being investigated and that involve novel approaches.  The research must be of high scientific merit.  The Foundation does NOT provide funds for support groups, education initiatives, medical equipment, or capital projects.  The Foundation will fund up to 10% in indirect costs.

Geographic Area


Time Frame

The next proposal deadline is August 14, 2015.  Applications will be available through our online grant software beginning on May 1, 2015 (online link available on ALS “Grant Application” page). Proposals will be reviewed in November 2015 and distribution of awards will be made prior to the end of December 2015.

Review Process

Applications are reviewed by an Advisory Committee comprised of scientific researchers, neurologists, and others who have had close relationships with friends and family members afflicted with ALS.  The Advisory Committee makes funding recommendations to the Foundation’s Trustees who make the final funding decisions.  Advisory Committee Members include:

J. Donald Capra, M.D. (Chair)

Pat Capra, Ph.D

John F. Coyle, M.D.

Francis Daniel Duffy, M.D., M.A.C.P.

Barbara A. Fries, M.D

David R. Gooden, Ph.D, J.D.

William Q. Sargent, Ph.D